The interior of New Plymouth. It is in colour, honest! |
Models of buildings for New Plymouth |
For those who get Linda’s facebook posts, you will know that there have been some developments with Alan’s health. At the end of February Alan had the first of his two infusions of a drug called Rituximab, which is usually given to people with Rheumatoid Arthritis. He had this about 18 months ago and it helped him for about 6 to 9 months before the effects faded. He has now also had the second dose and is already finding some benefits. He seems to have a bit more energy and is feeling a bit more positive. We hope this continues and he improves even more as he did the last time he had this drug.
Another potentially positive piece of news is that Alan’s Rheumatologist has been in correspondence with one of the leading experts in this country on Erdheim-Chester Disease at Leeds Teaching Hospital. The latest is that Alan’s notes, scans, and biopsies have been requested. We hope this will lead to something good, but have learned not to get our hopes up too much.
The website has been updated and shows the new total of
donations on the front page, it has also been updated on the funding page. Both
pages also show the amount we hope to raise, this is not a set in stone amount
and any money over this will also be used on the film, maybe even to enhance
the showing of it at Armadacon in November. One or two people have used the
contact form and this seems to be working so Linda is very relieved about this,
it was one of the aspects of the website that wasn’t able to be checked before
going live. The details of how to make a donation via PayPal have also been
added to the funding page, but don’t feel obliged to use this method. If you
want to make a donation in another way, or even set up a regular small payment,
then contact us and we will send you the details.
All monies donated will be moved to an old savings account
of Linda’s that had the princely sum of 68p in it. It will mean money has to
pass through Linda’s main account to get to the savings account, but as she is
keeping records of all money movements she makes this should be transparent. When
money is needed for the film it will be moved to Linda’s main account and then
on to Alan. Again, records will be kept of the money moved. We want to be
totally transparent about the donations, that way you will feel totally happy
about donating.
Thank you again for all your support, it is greatly appreciated.
More news will be posted soon.
Thank you again for all your support, it is greatly appreciated.
More news will be posted soon.